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What is supported decision making?

Supported decision making is about listening to people with disabilities and helping them make choices. You might be doing it already.

Supported decision making uses four principles or beliefs about people's rights:

  1. Everyone has the right to make decisions.
  2. Everyone has the right to take risks.
  3. Everyone has the right to support.
  4. Everyone should respect what a person decides. 

For example, maybe the person you support has to decide what to do about a support worker who sexually harassed them. Perhaps they are deciding how to respond to a "dick pic" (a photo of a penis) someone sent them online. We will talk more about these examples below. 

How can you help the person you support choose what to do? How do you avoid taking over and making the decision yourself?

Letting go of control can be scary, but people with disabilities deserve to have a say in their lives.

What if the person you support is in danger? 

Everyone has a right to take risks and make mistakes. 

However, don't ignore your worries. If you think someone with disabilities is being hurt or abused, ask them about it. You can learn how to have conversations about violence on the Neve page How to talk about violence (internal link).

You can also get help deciding what to do. The National Disability Abuse and Neglect Hotline works with callers to find appropriate ways of dealing with reports of abuse and neglect of people with disabilities. To make a report, contact the Hotline on 1800 880 052 or email hotline@workfocus.com. Let the person you support know about this conversation.

If needed, report the problem to authorities. You could call your local police or speak to a relevant government organisation, like an Ombudsman, the NDIS Quality and Safeguards Commission or the Australian Human Rights Commission. Let the person you support know if you do these things. 

How to offer support

When you support someone to make a decision, you:

  • Help them get the information they need to make the decision. For example, you could share information about sexual harassment or online safety. You could help the person you support look up relevant policies. In the case of sexual harassment, you might find steps that say what you can do. You might find rules that say what is allowed and what is not. You can learn more about this on the Neve page Sexual harassment (internal link). You can learn more about online safety on the Neve page Abuse through technology (internal link).
  • Make sure they have information in a way they can understand it. It is important you provide the person with information in a format that works for them. Some people may want information in Easy Read. Others may want information explained to them verbally or in video format. Look for resources with pictures. Read the information together. Talk about what you read. Give examples that make sense to the person you support. Ask them to tell you what they have understood. If you think they have misunderstood, talk more.
  • Help them consider the options, including positive and negative outcomes. Together, make a list of "pros" and "cons." Carefully consider each choice. Talk about real things that could happen. Talk about what could go wrong. Talk about what could go well. Share ideas. Be curious about what the person you support wants and doesn't want.
  • Support them in making a decision based on their own will and preferences. Accept that the person you support is not the same as you. Sometimes, they will   make choices you agree with. Sometimes, they will make choices you disagree with or disapprove of. It's your job to be supportive. Only intervene if you think the choice is dangerous.
  • Help them tell people about their decision. Talk with the person you support about who needs to know. Must they tell a support worker? Their parents? An organisation? Their partner? Someone else? Make a list together. You don't have to do the telling yourself. Practice together so that the person you support feels prepared.
  • Help them act on their decision. You could help them file a complaint, read a draft of an email they want to send, or support them as they talk to the police. Whatever choice the person you support makes, taking action is empowering. It is okay if they make a mistake.

Getting ready for supported decision making

To prepare for supported decision making, you can:

Build trust. Create a trusting relationship so the person you support feels comfortable talking and sharing with you. You build trust when you are:

  • Honest.
  • Reliable.
  • Willing to say you're wrong.
  • Helpful.
  • Good at listening.
  • Good at remembering what's important to the person you support.

Listen well. Pay close attention to what the person you support says. Show them you value their ideas. If they don't like someone, ask why. 

Ask questions. Encourage the person you support to talk about themselves. Ask questions that need more than a yes or no answer. Try questions like:

  • "How did you feel when…?"
  • "How would you like to tell me about…?"
  • "Could you tell me more about…?"

More resources

The Neve website explains different types of violence and abuse in the section Violence and abuse (internal link).

Neve talks about being assertive on the page Speaking up for yourself (internal link).

Neve also shares information on Saying no and setting boundaries (internal link).

You can explore the website with the person you support. Most articles are available in Easy Read versions.

You can learn more about supported decision making at Inclusion Australia and the Centre for Intellectual Disability (CID).

Here are some useful resources (external links): 

1800 RESPECT

If you experience violence or abuse you can contact 1800 RESPECT for support and counselling.
Call 1800 737 732 or go to the 1800 RESPECT website to chat with someone online (external link).

‍To contact 1800RESPECT via SMS, text ‘HELLO’ or any greeting to 0458 737 732 to start the conversation.

Our rights

We all have the right to live free from violence and abuse, and make choices that matter to us. This section looks at the history of human rights and United Nations conventions. We outline the rights of women and gender-diverse people with disabilities in Australia.

Find out more

Speaking up for the person I support

Advocating for a person with disabilities means looking out for their needs, rights and interests. It involves speaking up, solving problems and supporting helpful actions. It's about promoting their independence as much as you can. Here we explain how to be an effective advocate.

Find out more

Resources.

May 7, 2024

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Disability Advocacy Network Australia

Find an Advocate

Tools and information to help you find advocacy services in your state or territory.

Check resource

May 4, 2024

|

Disability Australia Hub

Self-advocacy

Self-advocacy is when someone with disability speaks up and represents themselves. This guide shows you how.

Check resource

May 4, 2024

|

Family Planning NSW

Disability resources

Family Planning NSW has a wide range of resources for people with intellectual disability and their support people, including parents and carers, disability workers, clinicians and students.

Check resource

May 4, 2024

|

Black Dog Institute

Healthy Mind

Healthy Mind is an online Easy Read tool for building good mental health.

Check resource

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Supported decision making

Everyone has the right to make decisions about their lives. We all get support from friends or families to help us with big decisions. Some people with disabilities need extra support. Supported decision making is about giving people the information and help they need to make their own choices. This article explains how it works and what to do.

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